Do you have exciting and inspiring news coming from your rare disease community? We want to hear all about it and share it with the world during 24 Hours of Rare, held on February 28th, 2023, in celebration of World Rare Disease Day.
“When we launched 24 Hours of Rare in 2020, our goal was to highlight progress and share updates from rare disease communities that might not receive as much attention as others due to their geographical location or a limited number of patients.
Post-COVID, it has been more important than ever for us to not only share more of what’s good in the global rare disease space, but to keep us all connected. 24 Hours of Rare does just that by uniting all of us for single day, in a single space.
– Eden Lord, Creator of 24 Hours of Rare and CEO of The Dash Alliance for Rare Disease Collaboration
If you have an update from your non-profit organization, medical facility, or patient community, please share a brief 5-minute video with us at 24hoursofrare@thedashalliance.com.