2.28.23 World Rare Disease Day
24 Hours of Rare
100% Virtual
Welcome to 24 Hours of Rare
24 Hours of Rare is the only virtual event that celebrates the global rare disease community with content programmed by the rare disease community. Join us in our 3rd year for a celebration unlike any other!
On February 28th, 24 Hours of Rare will highlight the best of the global rare disease community, straight-up at noon, time zone by time zone. Don’t miss the amazing work being done by rare advocates, patients, medical professionals, and researchers around the world as we celebrate the global rare disease community, live from time zones around the world.
Come back on March 1 for a series of panels, breakouts, workshops and networking sessions focused on the topics and issues impacting the global rare disease community.
Want to join us? Email us at 24hoursofrare@thedashalliance.com or register here.
Discover How to Move the Needle for Rare Patients Globally
Hear Updates from Across the Globe
Networking Sessions
Live Chat with Attendees
Access to Resources
2023 Conference Schedule
Below you'll find the schedule for 24 Hours of Rare 2023. We'll keep this page regularly updated with all new speakers and sessions, so be sure to keep checking in!
Welcome from the Research Triangle Park and the United Kingdom
Main Stage 1h 0min Rebecca Stewart - Rare Revolution MagazineNicola Miller - Rare Revolution MagazineEden Lord - CEO The Dash AllianceJoin us as we kickoff the 3rd Annual 24 Hours of Rare Event with the team from Rare Revolution!
Hour 2
Main Stage 0h 55minHour 2
Hour 3
Main Stage 0h 55minHour 3
Hour 4
Main Stage 0h 55minHour 4
Hour 5
Main Stage 0h 55minHour 5
Hour 6
Main Stage 0h 55minHour 6
Hour 7
Main Stage 0h 50minHour 7
Hour 8
Main Stage 0h 50minHour 8
Hour 9
Main Stage 0h 50minHour 9
Hour 10
Main Stage 0h 55minHour 10
Hour 11
Main Stage 0h 55minHour 11
Hour 12
Main Stage 0h 55minHour 12
Hour 13
Main Stage 0h 55minHour 13
Hour 14
Main Stage 0h 55minHour 14
Hour 15
Main Stage 0h 55minHour 15
Hour 16
Main Stage 0h 55minHour 16
Hour 17
Main Stage 1h 15minHour 17
Hour 18
Main Stage 1h 30minHour 18
Hour 19
Main Stage 1h 20minHour 19
Hour 20
Main Stage 0h 50minHour 20
Hour 21
Main Stage 1h 30minHour 21
Hour 22
Main Stage 1h 30minHour 22
Hour 23
Main Stage 1h 50minHour 23
Hour 24
Main Stage 1h 00minHour 24
What is 24 Hours of Rare?
24 Hours of Rare is a 100% Virtual Event that highlights rare disease organizations from around the world.
Presenters join us from around the world to discuss advances in research and medical breakthroughs.
Attendees have the opportunity to network with other rare disease patients and advocates across the globe in virtual networking spaces designed to unite the community.
500
Participants
30+
Speakers
24
Hours of Content
Thank You #24HoursOfRare Supporters & Participants
We wouldn't be able to host this event every year without help from these amazing supporters. A huge thanks to all of our participants!
