24 Hours of Rare
24 Hours of Rare 24 Hours of Rare
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2.28.23 World Rare Disease Day

24 Hours of Rare

100% Virtual

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About 24 Hours of Rare

Welcome to 24 Hours of Rare

24 Hours of Rare is the only virtual event that celebrates the global rare disease community with content programmed by the rare disease community. Join us in our 3rd year for a celebration unlike any other!

On February 28th, 24 Hours of Rare will highlight the best of the global rare disease community, straight-up at noon, time zone by time zone. Don’t miss the amazing work being done by rare advocates, patients, medical professionals, and researchers around the world as we celebrate the global rare disease community, live from time zones around the world.

Come back on March 1 for a series of panels, breakouts, workshops and networking sessions focused on the topics and issues impacting the global rare disease community.

Want to join us? Email us at 24hoursofrare@thedashalliance.com or register here.

Event Schedule
24+ Hours of Updates

Discover How to Move the Needle for Rare Patients Globally

  • Hear Updates from Across the Globe

  • Networking Sessions

  • Live Chat with Attendees

  • Access to Resources

2023 Conference Schedule

Below you'll find the schedule for 24 Hours of Rare 2023. We'll keep this page regularly updated with all new speakers and sessions, so be sure to keep checking in!

  • Tuesday, February 28
  • Wednesday, March 1

Tuesday, February 28

7:00 AM8:00 AM
Welcome from the Research Triangle Park and the United Kingdom
Main Stage 1h 0min Rebecca Stewart - Rare Revolution MagazineNicola Miller - Rare Revolution MagazineEden Lord - CEO The Dash Alliance

Join us as we kickoff the 3rd Annual 24 Hours of Rare Event with the team from Rare Revolution!


8:00 AM8:55 AM
Hour 2
Main Stage 0h 55min

Hour 2


9:00 AM9:55 AM
Hour 3
Main Stage 0h 55min

Hour 3


10:00 AM10:55 AM
Hour 4
Main Stage 0h 55min

Hour 4


11:00 AM11:55 AM
Hour 5
Main Stage 0h 55min

Hour 5


12:00 PM12:55 PM
Hour 6
Main Stage 0h 55min

Hour 6


01:00 PM1:55 PM
Hour 7
Main Stage 0h 50min

Hour 7


02:00 PM2:55 PM
Hour 8
Main Stage 0h 50min

Hour 8


03:00 PM3:55 PM
Hour 9
Main Stage 0h 50min

Hour 9


4:00 PM4:55 PM
Hour 10
Main Stage 0h 55min

Hour 10


5:00 PM5:55 PM
Hour 11
Main Stage 0h 55min

Hour 11


6:00 PM6:55 PM
Hour 12
Main Stage 0h 55min

Hour 12


7:00 PM7:55 PM
Hour 13
Main Stage 0h 55min

Hour 13

8:00 PM8:55 PM
Hour 14
Main Stage 0h 55min

Hour 14


9:00 PM9:55 PM
Hour 15
Main Stage 0h 55min

Hour 15


10:00 PM10:55 PM
Hour 16
Main Stage 0h 55min

Hour 16


11:00 PM11:55 PM
Hour 17
Main Stage 1h 15min

Hour 17


Wednesday, March 1

1:00 AM1:55AM
Hour 18
Main Stage 1h 30min

Hour 18


2:00AM2:55 AM
Hour 19
Main Stage 1h 20min

Hour 19


3:00 AM3:55 AM
Hour 20
Main Stage 0h 50min

Hour 20


4:00 AM4:55 AM
Hour 21
Main Stage 1h 30min

Hour 21

5:00 AM5:55 AM
Hour 22
Main Stage 1h 30min

Hour 22


6:00 AM6:55 AM
Hour 23
Main Stage 1h 50min

Hour 23


7:00 AM7:55 AM
Hour 24
Main Stage 1h 00min

Hour 24


Reserve My Seat
24 Hours of Rare

What is 24 Hours of Rare?

  • 24 Hours of Rare is a 100% Virtual Event that highlights rare disease organizations from around the world.

  • Presenters join us from around the world to discuss advances in research and medical breakthroughs.

  • Attendees have the opportunity to network with other rare disease patients and advocates across the globe in virtual networking spaces designed to unite the community.

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500

Participants

30+

Speakers

24

Hours of Content

Thank You #24HoursOfRare Supporters & Participants

We wouldn't be able to host this event every year without help from these amazing supporters. A huge thanks to all of our participants!

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Stay In The Loop With #24HoursofRare2023

24 Hours of Rare gathers the brightest minds in the rare disease community. Join us to get insights from experts and stakeholders from all around the globe!

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