rare Rememberance Project

If you've loved someone with a rare disease diagnosis, chances are you're not a stranger to loss.

#RareRememberance is our way of honoring the lives of those we've lost to their diagnosis. 

Want to participate? Send us a very brief video clip (10 seconds or less) or pic of your loved one and we will add your submission to our video project, scheduled to premier during our event week. 

Just follow these easy steps to join us:

1. Send us a pic or short video to  us at 24hoursofrare@mycitymed.com.
2. Include the following in your email:                             

• You or your loved ones name and diagnosis. If you're comfortable with it, you can add the year they passed.
• A waiver (see the language below)  

Then be sure to register for the event and network with other caregivers and loved ones.

Thank you for participating!

Sample Release: THE 24 Hours of Rare PHOTO RELEASE FORM 

I hereby grant the My City Med permission to use my likeness in a photograph, video, or other digital media (“photo”) in any and all of its publications, including web-based publications, without payment or other consideration. I understand and agree that all photos will become the property of My City Med and will not be returned. I hereby irrevocably authorize the My City Med to edit, alter, copy, exhibit, publish, or distribute these photos for any lawful purpose. In addition, I waive any right to inspect or approve the finished product wherein my likeness appears. 

Additionally, I waive any right to royalties or other compensation arising or related to the use of the photo. I hereby hold harmless, release, and forever discharge the My City Med from all claims, demands, and causes of action which I, my heirs, representatives, executors, administrators, or any other persons acting on my behalf or on behalf of my estate have or may have by reason of this authorization. 

I HAVE READ AND UNDERSTAND THE ABOVE PHOTO RELEASE. I AFFIRM THAT I AM AT LEAST 18 YEARS OF AGE, OR, IF I AM UNDER 18 YEARS OF AGE, I HAVE OBTAINED THE REQUIRED CONSENT OF MY PARENTS/GUARDIANS AS EVIDENCED BY THEIR SIGNATURES BELOW.  I ACCEPT: (Type your name as signature)