Free Registration for All Patients, Caregivers, and Medical Students.
Are you ready to be a part of the world's largest rare disease event for the global rare community as a sponsor, exhibitor, or presenter? Contact us below to learn how you can join us.
Are you ready to share your story? We are looking for rare disease patients and caregivers to share their story during our celebration. Reach out to us if you'd like to participate live or submit a video to be shown during our celebration.
This is your event - now's the time to tell your story!
(After we receive your submission, we'll reach out with a waiver allowing us to share your story at the event.)
We know that kids sometimes struggle with a rare disease diagnosis. This is a safe space to share your story (with permission).
If you'd like to share your story (or your child's) email us and we'll send you a waiver before you upload your story.
We know you're part of the rare community, too, and our greatest allies when it comes to raising awareness. You're the ones who launch the fundraisers, organize the meal trains, and show up for the 5k walks.
Join us and tell your story - why does rare matter to you?