Free Registration for All Patients, Caregivers, and Medical Students.
Register now and join us for an impactful week of sessions, panels, networking opportunities, and more! Free patient, caregiver, and med student tickets available. Register here.
Want to network with your peers or connect with non-profit reps, medical students, or other advocates? Register for the event and then sign up for one of our facilitated meetups or connect with other attendees in our lounges.
Are you ready to share your story via video or the written word? Learn how you can contribute your story to our patient lounge here.
Is your child an artist? We want to showcase their work in our Little Rare Artists' Lounge! Learn how they can exhibit with us and receive a digitial certificate of recognition for their contribution here.
To celebrate our inaugural year of 24 Hours of Rare, we're launching a very special video project, #MyRareFootprints, to premier during our rare disease day event.
The purpose of this collaborative video project is to raise awareness for rare diseases by sharing where our rare journeys have taken us.
You can participate by sharing a brief video clip or photo with us here.
If you've been touched by rare, chances are you've lost someone you've loved.
Help us remember a special loved one who battled rare disease by sharing a brief video clip or photo with us to be used in the creation of a very special "Rare Rememberance" video project.
Learn how to participate here.